Whether you walk, jog or run, every step of the Bloody Long Walk will raise money towards a cure for mitochondrial disease.
Around 1300 people are expected to participate in the Mito Foundation’s annual fundraising event, walking 35 kilometres from Sandgate to the finish line at Kangaroo Point Cliffs Park.
Mito Foundation chief executive officer, Sean Murray said the walk was part of a nationwide initiative that supported families affected by mitochondrial disease (mito).
“So far, the response has been unbelievable for our Brisbane event, which is one of the ten Bloody Long Walks taking place across Australia this year,” Sean said.
“The truth is every week in Australia one child will develop a life-threatening form of mito – that’s 50 Aussie kids a year. Yet most people have no idea that the disease exists.”
Mito is a genetic disorder with no cure and few effective treatments.
“All money raised will help ramp up our support services for mito families, while funding vital research into prevention, treatments and cures,” Sean said.
This year, walkers will have an extra spring in their step following the passing of the Mitochondrial Donation Law Reform (Maeve’s Law) Bill 2021, giving families with certain forms of mito access to a clinical trial of mitochondrial donation. For more information and to register visit www.bloodylongwalk.com.au/l...